Harvey is a lovely little boy who is taking his adventure to high school in the next few months and his dream is to go to his prom with bikers around him or on the back of a bike. Can we make his dream come true by a lounging him to have a brilliant turn out Friston to his home to pick him up and then to the school to take him to his school prom.
My son harvey who suffers from a very rare condition Pachyonychia congenita. (it is an ultra-rare genetic autosomal dominant skin disorder. PC is caused by a mutation in one of five keratin genes KRT6A, KRT6B, KRT6C, KRT16 or KRT17). Harvey is leaving primary school this July and starting Secondary School come September.
As with most schools these days they have ...adopted the American theme of Prom Night. Harvey is to attend his Prom Night on July the 13th 2018. His dream is to be taken to the prom on the back of a motor bike followed by some of the finest bikers in the country.
I hope you all could help with making my little boy dreams come true.
Words from a close friend Donna Marie Ward that can tell you a bit about me and Harvey
Day to day life for Harvey is a massive struggle, like everyone some days are worse than others, there are days where he is in so much pain he has no choice but to remain in his wheel chair, up till recently he has only managed to welcome it in his life. his mother fights endlessly with his struggles, trying to make him comfortable and lead a relatively normal life. She does this mostly on her own or with the help of a few close friends and family. ..Donna thank you mean a lot xx
Harvey has been bike mad since the day he could talk and express his love for bikes, from wanting a 50cc of his own to building up and repairing bikes he has had donated to him in the past. It is his ultimate dream and I am honestly asking if any of you will be proud to make his dream come true.
Also a link that explains his condition in more detail, he has this for life, there is no cure, only guaranteed pain and discomfort only a few sources and medication to temporary relive the pain.
Thank you everyone that's helping make Harvey dream come true. Me and Harvey are both overwhelmed with the support and friends we had and made some far xx